I am happy to report that I had a super fun weekend. Well, Sunday was super fun, the rest of the weekend was just OK. I didnt sleep too well Friday or Saturday and that means that no one sleeps well. Sorry mom! Anyway, back to Sunday. I went to my first concert!!! Me, Dad and Granny went to see Laurie Berkner in Southfield. She plays the acoustic guitar and sings kids songs. My Berkley Early On Coordinator, Ms Karen, introduced us to Laurie's music and helped us get tickets. Thanks, Ms Karen!Unfortunately, Mom was busy with work. I missed her!Back to the concert...I wasnt too happy at first. I wasnt sure what was going on. I heard all these new noises, I was in a big hall, a synagogue, actually. I heard lots and lots of kids. I think there were like 600 people there. I was happy that Dad and Granny were with me. I sat on their laps and tried to figure all this new stuff out. About the 3rd or 4th song I started to warm up to the concert. I realized I was actually seeing someone sing songs and play music in person!! At home, I usually see the singers on TV or on the Ipod. This was so different. She was right there in front of me. So cool. I ended up having so much fun. I liked the music, I liked the lights, I liked the singing, I liked the clapping and the new noises. I think I am going to have to find a Laurie Berkner CD or some of her music on YouTube. It wont be the same as being there but the music is still fun. She even sang a song about taking a bath and brushing your teeth...it totally reminded me of mom and me having fun in the tub. I am going to play that song next time its bath time. So fun!!
OK, time for bed...
Go Spartans. Its squeaky shoe basketball time and the football team is on a role
New Pictures in the photo album! Yeah, Mom!!
The last week has been busy around here, but it has been fun too! Lets see, where to start? I have been going twice a week to therapy on the walking machine. Boy, that is quite a workout. I am pooped after 45 minutes. I am learning to weight bear and move my legs at the same time. The machine does most of the work but I am doing a little more each time. I have this week off so I am going to have to work on other things at home.
I had a big night out last Sunday. Mom, Dad and me were special guests at our neighbors fund raiser. Our new friends, the Kaplans, have teamed up with The Friendship Circle. They have named the The Great Bike Giveaway in honor of their daughter Michaela Noam. And since I am one of the luckiest ladies around and already have a bike, they asked Dad to speak about how cool the bike is. I will have more to share in a separate post. There is a lot to talk about.
On top of all that, it was Dad's Bday on Thursday. Mom and me made breakfast, gave Dad presents and later that night they went out. Granny Nanny was here and even spent the night with me!! It was super fun. On Friday, Uncle Matt, Aunt Michelle +1, and my cousin Emily came over. My cousin played with me, played my musical toys for me and we had a mini party. We had so much fun, we didn't want to go to bed. We both cried when our pajamas went on and had to go to bed. I still had fun though!
I hope Dad had a good Bday. Cause I sure had fun.
Saturday, we had a very rare day...we had nothing to do!! M&D were both home all day. All day!!! Dad cleaned the basement and mom played with me most of the day. It was great! Sunday we were back to normal. Mom was busy with photo shoots and Dad and I watched some football, played and hung out...a nice lazy Sunday.
I have a big day today. I am off to a renal ultra sound. I am getting pretty used to all these tests and check ups. The hardest part is that I cant eat. Ugh! Other than that, as long as Mom and the Ipad are with me, all is good.
After that I hope to get some Halloween pix done...coming soon!
Hi Everybody!I have been enjoying this wonderful weather. Isn't it great?Granny Nanny Rama was with me all day on Saturday and we went for a walk and she let me swing. I had so much fun! Today Dad and I played outside and then Farley went for a walk with us. This is perfect weather for me and my dog. We love it.I got back into therapy this week. We are practicing my walking. They have this super duper machine that helps me walk. I have a video but have no idea how to share it on this site. Maybe I will put it on YouTube and then put the link on here...Dad will get working on that.It is going to be a busy week around here. I will see Granny Nanny twice and then Grandma Carrie comes to town this weekend. I am going to get some serious GT this week.I also have to go to the dentist...boo. I dont think it will be too bad but I'd rather play or do something else. Like swing or bowl.It was a good weekend for those Spartans. Go Green!It has been a really good week for my Tigers. Wow have they been fun to watch. The pitching has been awesome. JV, Max and Anibal. Go Tigers Go! Aunt Michelle and Uncle Matt took M&D to game 4 against Oakland. They must have had a really good time cause they were really tired the next morning. I saw them drinking lots of coffee.OK, time for bed for this little lady. I will find out how the tigers did in the morning. These games are way too late.....Look for my video soon...promise.Ok, as I promised, here is the video, its on You Tube and here's the link: http://youtu.be/DS9fj4_vfMc
Here's me and Farley sitting outside on Saturday enjoying the weather while Dad was doing yard work. You can kinda see my new braces in this photo. Nothing like a cold bottle of milk and playing while Dad works!
I am happy to share that I am cast free. I had them removed this last week and it is so nice to see my legs and feet again! I can take baths again. A real bath in the tub. Not a lousy wash cloth one in the sink.
I can play in my bowl again too. Woohoo!
I am now in leg braces most of the day and night but they aren't too bad. I am working on standing, kneeling, crawling, scooting and all the fun stuff that goes with these new and improved legs. My muscles are really weak and I am going to need lots and lots of therapy. We are gonna take it slow and hopefully step by step...get it?!? Step by Step.
I am gonna work at it a little bit each day. Right now I am sore, I get tired and super crabby when we push it. Tuesday I am going back to the doctor for a follow up. Hopefully I get a good report card. From there I am going to try to get back into therapy. Its been a long time. I have been doing some stuff at home but its not the same.
All else is good here. I am enjoying the Fall weather, the cool nights...so nice. I am working on a costume and soon will be helping Mom with the decorations. I will be sure to share pictures.
Well I am going to get back to bein lazy on a rainy Sunday with M&D. The Lions are whopping the Bears right now...I like watching. I like the whistles and the colors!
I was able to enjoy last week's nice weather at the Cider Mill. Mom gets all the credit for an awesome idea. We had so much fun. We went on a tractor ride, we picked apples, I saw a sunflower garden and I never once got bit by a bee! It was a super fun day with M&D. Enjoy my new photos, there are more on the photo page. I will share more updates later but now I am off to UM Mott. And speaking of "off." These casts are finally coming off today. Wooohooo!!
Yup, I got another cold. No fun! My holiday weekend was cut down short. We hurried home on Sunday cause I was super stuffed up. Luckily this week it has been pretty much all nasal, with only some coughing. Hopefully it stays that way...yup, I still got it, 6 days later. I am fighting and fighting but it wont let go.
I got new casts too. I am on set 2 of 2. Yessssss!! 10 days left. I cannot wait. I have Sparty casts this time. One green leg and one while leg. Unfortunately, they aren't helping that pathetic offense. Not sure what that means but I heard Dad say some "not so nice" words towards the TV today...the only word I can repeat is "pathetic." At least they got a D-Fence...
I want to give a special THANK YOU all the way to Florida. My great aunts Arlene & Linda totally spoiled me. Since my wardrobe is pretty limited due to these casts (mom calls 'em weapons), I can only wear dresses. Not too easy to find around here this time of year. Anyway, my favorite aunts from Florida sent me a whole box of fun dresses. Yup, a whole box!!! Mom promises to share some photos...
Another big thank you to all those that are engaging in the year long Lions "squares game." Thanks to you and your entry into that pool, I now have a super duper new bike!!! Thank you so much, with a special thank you to Rocco and Julie who thought of me and made it all possible. As soon as these casts are off, its back to my bike. I cant wait.
Here I am as I was getting discharged. Not the best photo of me but Dad is making me share it!
Hi Everybody. Its been a long few days for this little lady. I had surgery as scheduled on Friday morning. I actually had three procedures done at UM Mott. I had my eyes examined and pictures of my optic nerve were taken. All looks good with my eyes and the doctor approved my next procedure!! I am going to have a sling done on my right eye and have the left eye sling redone. Oh boy! It should help me open my eyes more.
I then had my hamstrings lengthened and heel cords snipped to help improve my range. I cannot bend my legs more than 90 degrees but now I should have much better range...once these darn casts are off. Yup, casted from hip to toe. Ugh!!
Everything went well and I was home for lunch on Saturday. I really like Mott, they take great care of me there. That place is so nice, so clean and super modern. I had my own room with a super duper TV. Grandpa Jim came to visit me too. He surprised all of us!! I am so glad he did. I think everyone needed it at that point.
Well back to these casts things. I will be in casts for 4 weeks. Booo! I just started to scoot and crawl and climb and now I am trapped. M&D keep saying it is for the best. We are all hoping this is the first step of many to help me get more mobile and perhaps walking some day. It will be a long road, but step 1 is in full swing.
I also had a CT scan on my lungs. I haven't heard anything on that yet but hopefully that will be good news too. My BEG and BEE plans were both built to focus on my Breathing. I have been doing much much better on the B. Hopefully that CT scan doesn't have any surprises for us.
The weekend was good. I rested a lot. Trying to find things to do and keep my comfortable was the number one goal around here. I am happy to say I slept pretty good - lots of meds! But I know this little lady needs sleep to recovery and a little sleep wont hurt M&D either. Mom was a rockstar, she stayed with me all night. I think she almost made it awake for 24 hours. Whoa!!
So now that I have a BEG and BEE plan. I need a new plan. I still have a lot to do on the E part - Eat, but I need a new plan that includes walk. Dad said after these casts we are going to work harder on eating and drinking better. I think my new plan is the WE. Walk and Eat. I don't think M&D are going to appreciate the WED plan, so lets keep it simple and go with WE.
Focusing on WE will be my goal for the rest of the year.
They found this amazing school that should help me. I hope I am lucky enough to get in. I think it is in Grand Rapids, it is part of the DeVos Childrens Hospital. It is far away, but we heard it is amazing. I am OK with that. We can visit Grandma Carrie, Grandpa Tony and Great Grandma Jan while we are on that side of the state.
Finally thanks for all the prayers, well wishes, text messages and support for me and M&D. We had a ton of it and we love it!!!
I don't have much time today, but I certainly have enough time to say THANK YOU to my Great Grandma Jan, Grandma Carrie, Granny Nanny Rama and Great Aunt Fran for watching me while M&D we away. I am super spoiled and lucky to have such wonderful caregivers. M&D said that WE ARE ALL LUCKY!
Thank you for playing, singing, walking, swinging and all the other fun stuff you did with me.
As you may or may not know, I am in operation "stay healthy" mode over here. I have a pretty big surgery Friday at U of M Children's Hospital. So far, the "stay healthy" plan has been successful and Friday looks to be a go. I will update everyone later this week or weekend after surgery. Wish me luck and say a prayer....or two. I don't think the surgery is going to be so bad cause I wont remember that part. The four week recovery in full leg casts is going to be the challenge. I will be sure to update often.